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Maja Kost -  request for help

"...Who knows what a good thing may happen to a man during his short life that passes by quickly?..."

Dear Sir/Madame,

My name is Maja Kost. I am 4 years old. In the 11th month of my life I fell ill with the disease called metachromatic leucodystrophy. It is a rare disorder causing a loss of my nerves. There is no cure for the disease, but a proper equipment and rehabilitation will let me live. My parents will present my situation in a nutshell.

 

I would like to ask you so much to find some time to know me better. Just 5 minutes will do...

On behalf of Maja Kost - her mother

 

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